The “First Day of School” Thing

The “First Day of School” Thing

I can still remember the days when the kids were small and how excited they were to start their first day of school, well, mostly Bradley . . . Asheton not so much. The morning would be busy with making sure lunches were packed, school supplies were in the backpacks, the-first-day-of-school-new-clothes were ironed (Shannon doesn’t let anyone walk out the door looking like, as she calls it, a raisin) and then we had to make sure we were ready for work. It was hectic. It was exciting. It was our life!

Thanks to the fact that Alzheimer’s has not yet taken my long-term memory, I can still recall these things.

Flash forward to today. It’s about 7:15am, Shannon is getting ready for work, Dallas and I are sitting in my recliner watching the news. I hear one alarm go off and then another. Doors start to open and close. I know Asheton and Bradley are now up and about and getting themselves ready for the start of a new school year. With Asheton in College and Bradley in his Sophomore year in High School, it’s a far cry from when they were small.

Shannon leaves for work, Asheton and Bradley are talking in the kitchen and instead of cereal and juice, it was coffee and anything in the refrigerator they could either eat standing up or in the car on their way to school. (Asheton now drives Bradley to and from school because my driving is limited to just around the immediate area.) They hug and kiss me goodbye, get in Asheton’s car and away they go.

I know working parents have looked forward to this “First Day of School”  for they don’t have to worry about summer day-care; being concerned with who’s doing what to who and why; settling arguments over the phone and all that goes on at the house during summer break.
Then there are the stay-at-home parents that once the kids are out the door they may breathe a big sigh of relief; dance a jig; excitedly make a grocery list so they can go shopping ALONE; have the computer/laptop/iPad/Tablet to themselves; pleased to not hear, “MOM! / DAD! every 5 minutes.

I know I’m generalizing and this doesn’t pertain to everyone but you get the picture.

I included the sentence above because the above scenarios do not pertain to me.
I’ll tell you why.

I have found with Alzheimer’s, I don’t like being alone. I’m pretty sure I have not liked being alone all my life so I will say instead, Alzheimer’s has MAGNIFIED my desire to NOT be alone.

Having Dallas around has helped me cope with my loneliness a bit but, although Bradley and Asheton spend the majority of their time in their rooms, I’m comforted in knowing they are here. I’m not sure they are as comforted as I am for I sometimes tend to hover. I don’t mean to do this but from researching the topic, I have found that hovering is a side effect of Alzheimer’s. Our loved ones, especially our spouses, tend to be a sort of “security blanket.” I guess when Shannon is not around, I then turn towards Asheton and Bradley.

I tell them to tell me so I won’t do it but since my short-term memory short circuits, I continue to do it. They do tell me at times and they do it politely so as not to hurt my feelings. When I catch myself, I back off on my own. I get mad at myself for doing this because I know they all value their privacy. That makes it a bit difficult when you have 1 person who is dependent upon the other 3. The last thing I want to do is to be more of a burden on them than I already am. It’s a slippery slope this dependent thing.

So, this “First Day of School” thing has me feeling a bit anxious. I know they have told me their schedules and such but if I don’t write it down it becomes like dust in the wind. Well, I forgot to write things down. DUH!!!
Shannon, Asheton and Bradley are very good about keeping me informed of schedules and such so my anxiousness levels stay at a minimum. Since Asheton tends to write these things down for me, I will have her write some things down on my message board when she gets home. (of course I will have to make a note to remind myself to ask her to make a note. Geeeezzzz this gets to be exhausting.)

Anyways, when I am anxious or, experiencing some other emotion, Dallas sticks close to my side. I am more than thankful for his presence.  The link below is a video I made about this subject.

The advantages of having a pet when you have Alzheimer’s
https://www.youtube.com/watch?v=WX7sWgtiFHA

So, this “First Day of School” thing has changed a bit over the years. This is due the ages of these young adults who live with us and because of my Alzheimer’s. The thing that gets me through it all is my support system, the BRASH System. (BRadley, ASheton, Shannon) Yeah I know, I still have some of my creativity left.
As a side note, if you ever want to see how much of unnecessary knowledge I still have, come by and watch Jeopardy with me. For some reason, I’m really good!  Lol

So, whether you’re a working parent, a stay-at-home parent, or anyone else who has the job of raising these wonderful human beings called children, I hope your, “First Day of School” thing was a good thing.

Until Next Time,
PEACE

I Have Alzheimers, BUT It Doesn’t Have Me!

Attack of the Mean Tweets

Attack of the Mean Tweets

I had to wait a few days before writing this for if I didn’t, it would be laced with extremely angry, foul language which I don’t deem appropriate for this arena.

To give you a little background before I get to the topic, I am very active on Twitter, Advocating as much as I can, sharing information that I feel what is worth sharing. I use an application called #TweetDeck which allows me to see multiple trends and searches all in one area. (I do anything I can to make my Alzheimer’s life less complicated.) Naturally, I have searches for Alzheimer’s, Early Onset Alzheimer’s, ENDALZ, and other hashtags related to Alzheimer’s.

I also read other tweets, some of which I find interesting, some I just skim by and then there are the eye catchers. These are the tweets that jump off the computer screen and shouts, “READ ME!” So, I do.
These tweets can be breakthroughs in the pharmaceutical area, they can be funny tweets or they can be, as it was in this particular instance, a mean tweet.

I came across this tweet and it shook me a bit:

Tweet: Up late at ma’s looking up random hashtags and of course most #EarlyOnsetAlzheimers tags are people joking about their memory #NOTFunny.

Here is a young lady at her Mother’s (who has Alzheimer’s) looking up #EarlyOnsetAlzheimers to find information about the disease and she found this. I thought to myself, “This can’t be true. Are there really people using the Early Onset Alzheimer’s hashtag to make jokes?” So, I went searching. This is just some of what I found:

Tweet: When my coworker gets mad at me for asking him the same questions daily sorry I’m like an 80 year old! #EarlyOnsetAlzheimers #Oopsie

Tweet: I just actually had to think about whether it was 2015 or 2016. #earlyonsetalzheimers

Tweet: Why do I keep forgetting that I have food in the oven?! #surpriseditdidntburn #earlyonsetalzheimers #ijustwantsomedinner

Tweet: My dog is on my bed, and I don’t remember how she got up here #earlyonsetAlzheimers

Tweet: Good thing I watched snapchat to remind my boyfriend he has a probate going on like right now. Lmao #EarlyOnsetAlzheimers

Tweet: Sat at the burrito shop for 30minutes realizing I called in at the wrong place …. #EarlyOnsetAlzheimers

Tweet: Literally could not think of the word EBOLA and just wrote the letter E on my test. #killme #EarlyOnsetAlzheimers

I was appalled. I couldn’t believe the ignorance, the insensitivity, the shallowness these individuals were exhibiting.

In anger (yes I know not to send e-mails, tweets are facebook posts when angry…but I did) I posted one of my own and here are a few responses I received.

(I am withholding their names to protect their assholishness)

The ALZ Guy@TheBrianLeBlanc Aug 4
My Tweet: I cannot believe there are people this cruel using #EarlyOnsetAlzheimers to make jokes. REALLY??? 

Reply Tweet: @TheBrianLeBlanc I’m sure youll forget all about my tweet soon #norulesontwitter


Reply Tweet: @TheBrianLeBlanc when you take a joke to seriously… #
Womp

Reply Tweet: @TheBrianLeBlanc I see you play the victim card so well you’ve made a career from it #envy

I then began to see some tweets from others who felt the same I did:

I then began to see some tweets from others who felt the same I did:

Tweet: Do you really have to be such an ass?

My Tweet: I’m not a victim of anything. I have ALZ. I Advocate to make people aware of this horrible disease.

Then the “Twitter Bully” posted this. I felt as if I were back in 3rd grade!

Tweet: @TheBrianLeBlanc  #norulesontwitter #hestartedit #lastword

He may as well have said “Nanny Nanny Boo Boo.” He started it? lol
I realized at that point the type of immature, ignorant bully-type individual I was  dealing with.

I also realized by showing my anger just fuels his little mind and gratifies him.

So, I blocked him.

I started thinking about why this got to me so bad. Yes, I have Early Onset Alzheimer’s and I love a good joke as much as anyone else. Was I being unreasonable? Was I taking this too seriously?

Then I realized I had been surrounded by Alzheimer’s for over 30 years starting with my Grandfather in the 80’s. I saw my Mother go from an extraordinary, church-going, intelligent woman; someone who could sing like an angel; someone who was always there for her children for as long as she was able; to someone who could no longer communicate and no longer knew who her children were. I don’t wish that upon anyone, yet it will all happen to me, just like it did to those who came before me.

I also realized that newly diagnosed individuals use #EarlyOnsetAlzheimers to find out information that may help them cope, help them understand, help them get through to another day. They don’t go there to find people making jokes or pretending to have this disease.

So, for all those “Twitterers” out there who thinks it’s funny to use #EarlyOnsetAlzheimers to make jokes, I ask you to go to you a nearby care facility. Look at the faces of people with #Alzheimers. Look at the faces of their friends and family. Go to my Twitter account and look at my face. Take plenty of mental pictures so the next time you want use #EarlyOnsetAlzheimers to make a joke, use your brain to recall what you saw and realize that each day, those of with Alzheimer’s Disease lose a little piece of our brain each and every day.

There’s nothing funny about Alzheimer’s!

Until next time . . . PEACE

B

I Have Alzheimer’s, BUT It Doesn’t Have Me!