Who’d be an advocate…

“Who’d be an advocate . . . ” , beautifully written by Kate Swaffer, shows the side of having a Dementia Related Illness not many people see or understand.
Thank you Kate, for being a beacon, a truthteller, a wonderful human being!

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It seems I have written on

Dementia advocacy before

Who’d have known

It’s more pain than joy

It polarises people

Sadly makes it more ‘them and us’

People without dementia everywhere

Wanting large pieces of the proverbial pie

Using people with dementia

To take sides and support their business goals

Or their personal agendas

Being referred to as That woman…

Hurtful and deeply unkind

Talked about behind my back

Worse than yelling in my face

As one aged care executive did to me publicly

So please…

If you won’t say it to my face

Then please

Feel free to hate me

Feel free to disagree with me

But please keep your lips sealed

Stop hurting me

Which also hurts others with dementia

As today

Quite frankly

There is no doubt in my failing and fragile mind

That I have had enough instruction!

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