19 thoughts on “The Attack of “The Nothingness”

  1. Bless you Brian for giving us insight to what is going on in your journey. I’m learning the more I know about others journey helps me be a better caregiver.

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  2. So sorry your are experiencing this feeling of nothingness. I’m glad your able to describe because I’m sure others can relate. I love your idea of making a play list of the songs of your life. I’ve been making one on Spotify and I love it. I use it to calm me down and relax.

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  3. Thank you for continually helping me to better understand how my mom has felt and is feeling. She is now in stage 6-7. I am 52 and feel that I may end up going through the same thing as her. I am so sorry for what you have been through and are going through. Please know that you ARE helping many, many people.

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  4. I just stumbled on your post. What a beautiful explanation of what you are experiencing and I’m so inspired by the tools you are using to live each day. I’m going to put some in place for my husband although he has always, pre-Alzheimers, been adept at ignoring alarms and reminders…lol. But it’s worth a try. Please keep writing.

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  5. Hi Brian, I have just come across your blog on the DAI FB page. When I read it, my immediate thought was I could have written this. Like you I am a dementia advocate, living alone with dementia (mine is FTD though). I use alarms in the same way as you do, to get me through the day (eating / drinking/ bathing / toileting). I have prepared my music list, that I play regularly and also a physical and cognitive exercise program, which Google prompts me to do each day. I too recognise the nothingness and keep myself really busy with my advocacy work and social activities to avoid slipping into the nothingness that takes over as soon as I don’t keep myself active and grounded. It was great to recognise my life as it is now, in your words. I felt as though I had met a kindred spirit. Thank you.

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  6. Hi Brian – Your first paragraph said it so correctly: writing a note and then wondering what you meant. I even wondered once if I’d picked up someone else’s piece of paper, I didn’t the poor handwriting was mine! Where you and I differ is nighttime where I can wake three or four hours after going to bed and lying there wide awake. Then I too have nothingness. I have a brain that feels like it’s going round and round quickly but generating nothing. It was an excellent blog post, Brian, thank you. I hope you are doing okay! Jim Mann, Canada

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