World Alzheimer’s Day

Each Year on September 21st is World Alzheimer’s Day.
I will start out with what IT’S NOT!
* IT’S NOT a day of Celebration!
* IT’S NOT a National or International Holiday!
* IT’S NOT a day for cookouts or Backyard Bar-B-Ques!

What it is, is a day to call AWARENESS to
* a Disease that has NO PREVENTION!
* a Disease that has NO WAY TO STOP the PROGRESSION!
* a Disease that has NO CURE!

I guess you can see why I don’t exactly call this a “Day to Celebrate.”

You will probably see a lot of photos on Facebook, Instagram, Twitter and other Social Media of individuals wearing purple. It’s a way of calling awareness to a Horrendous Disease.

One of the strangest things about this disease is it doesn’t exactly cause people to die. According to the Alzheimer’s Association . . .
” Alzheimer’s disease leads to nerve cell death and tissue loss throughout the brain. Over time, the brain shrinks dramatically, affecting nearly all its functions. “

It is said that no one dies from Alzheimer’s, instead they die with it.
To put it in plain English, Alzheimer’s attacks different pieces and parts of the brain, causing those pieces and parts to malfunction and cease operation, therefore, in some cases, the “affects” of Alzheimer’s is the cause of death.

Alzheimer’s and other Dementia’s are classified as “Degenerative Diseases.” Maureen and I wish they would classify them as “Degenerative Disabilities” because the world works to create solutions to live a better quality of life for individuals with Disabilities and it works to help those with Incurable Diseases live more comfortably as they die. Why not build cognitive ramps in our world for Persons Living with Dementias-Related Illnesses LIVE” in our world rather than DIE in our world.

Here are some Facts and Figures from the Alzheimer’s Association.
https://www.alz.org/alzheimers-dementia/facts-figures

  • More than 5 million Americans of all ages have Alzheimer’s.
  • An estimated 5.8 million Americans age 65 and older are living with (Alzheimer’s) Dementia in 2020.
  • Eighty percent are age 75 or older. One in 10 people age 65 and older (10%) has Alzheimer’s dementia.

Where are the statistics of Individuals, like my friends and I, who are Under the age of 65, who are “Living Well” with Alzheimer’s, Vascular Dementia, Lewy Body, Parkinson’s, White Matter, FTD, CTE, MCI?
Do we count?
Are we not as important as our elders?
Where do we fit in the Alzheimer’s equation?


Inquiring minds would like to know.

Until Next Time,
B
Stay Safe and . . . PEACE



2 thoughts on “World Alzheimer’s Day

  1. What a great article. Not a happy article and yes, a truthful article. I cared for my Mum after her Alzheimer’s diagnosis, until her death on July 3, 2019. I am just recently surfacing from the suicidal depression that has plagued me over the past 3 years, and continually for the past 12 plus months. I managed through Mum’s death, then all the paperwork; and finally, preparation and mailing of a Margaret Taylor package to family throughout Great Britain and friends in many provinces in Canada….and then I crashed!

    My childhood girlfriend, like me, turns 59 this year. She was diagnosed with Early Onset Alzheimer’s 3 years ago. She too, like my Mum, is fighting it all the way! My maternal Grandma died at 68 years old with Early Onset. My maternal Grandpa died at 79 with Alzheimer’s. I have been tested in 2007 and 2015 for dementia. As yet, it has not been my diagnosis. I do have severe memory challenges and have had these for many years. And yes they are getting progressively worse, year over year.

    I pray that you both continue to LIVE your life fully, one day at a time. Thank you very much for your honesty and this excellent article!

    Like

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